WOW! Seven years ago, this week our family was dealing with our own personal hell. Cooper was a growing 3-year-old boy who was healthy, comedian, and a sports junkie. Cooper became sick and we took him to the doctor to have him checked out. The doctor explained that he had to be rushed in for an emergency appendectomy. Okay, I …
The past two weeks I have racked up the mileage both in the air and over the road. Two weeks ago, I had the pleasure of boarding a Southwest flight and head to Canton, Ohio for our first 5k of the race season. It all started seven years ago, this coming up September when our Cooper was diagnosed with Kawasaki …
So, you’re asking yourself – How do I grow awareness and educate others about Kawasaki Disease? These days, almost anyone can advocate for any cause. Be it about health, social movements, animals, or politics – you name it, there’s a believer in it. The Kawasaki Kids Foundation has fantastic supporters that are continually looking for ways to grow awareness in …
Last week, I had the pleasure of heading to sunny San Diego for a nonprofit and social media conference and to meet with Dr. Jane Burns. Coming from the winter weather recently in Colorado, I was looking forward to 75-degree weather in California. I was in for a shock as I got off the plane and was hit with fog, rain, …
How is donating blood or plasma necessary for an IVIG treatment?
Today as I sit and write my monthly blog and I realize how truly important donating blood and plasma is to our KD children. IVIG is the treatment for the majority of children who are diagnosed with Kawasaki Disease no matter the age. IVIG is immune globulin purified from plasma by a manufacturing process called fractionation and administered intravenously to patients. This magic drug is what transforms our children from the hell that has plagued their body in the form of inflammation, to smiling, talking, and moving once again.
Over the past month you may have or may not have noticed some minor changes to the Kawasaki Kids Foundation. We are not talking about what we do, who we do it for, our purpose, or the simple fact that we are here to fight Kawasaki Disease (KD) and to save kids’ hearts around the world. What we are talking …
Kawasaki Kids Foundation loves partnering with other organizations in spreading the word about worthy causes and events—Alexa’s Hugs is one of the many. Coming May 7 is the Alexa’s Hugs 5K & Family Fun Run at Fossil Ridge High School in Fort Collins, CO. Kawasaki Kids Foundation will have a booth at the event and invites you to register and bring …
